sarabear ([info]sarabear) wrote,
@ 2001-07-31 16:21:00
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Current mood:devastated

...
well...

my leukemia isn't in remission anymore.

last thursday i had a blood test, and i had been feeling pretty crappy all week with a fever. then yesterday morning my mom rushes into my room bawling because my doctor called and said he needed me to come in for a bone marrow test. apparently he saw things in my blood that looked suspicious, and he needed bone marrow to confirm whether or not i'm sick again.

so, yeah.. we're still waiting for the full results of the bone marrow, but from what my doctor saw, about 10-12% of the cells were resembling the early stages of leukemic cells. i go in next wednesday to "discuss my options" or whatever.

they can't do the same chemo that they did before...cause even though it put me in remission, i only stayed that way for 5 months. they're thinking about a bone marrow transplant... i'm not sure.. ugh.

so. yay. i begged my doctor to let me go to the concerts that i have tickets for this week, and he said ok, but that i needed to stop working and un-enroll at UW right away. so i'm going to endfest, even though i'll probably have a crappy time, and i'm still going to tool... thank god we have reserved seats.

other than that... back to the hospital? i don't know =(

i just want to be normal again.


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[info]carley
2001-07-31 06:40 pm UTC (link)
honey. :\ we ruv roo! do you know someone who has matching marrow? how might i go about getting tested? if you needed some, i could be a donor.

-c.

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[info]crowriff
2001-07-31 09:09 pm UTC (link)
I posted to this l/j entry to. I included what I know about bone marrow transplant. If you have further questions and you can't get a hold of Sara, feeel free to talk tome. I have donated and can tell you more about it if you want. See you saturday?

(Reply to this) (Parent)
Re:
[info]sarabear
2001-07-31 11:50 pm UTC (link)
my brother isn't a match, and parents are always a 50% match each, so they're basically looking on the national donor list. it's so sweet that you'd want to get tested =) it hurts like a mother fucker though!! i'll ask my doctor for info if you like. thanks for the comment sweetie. i love you too =) =)

(Reply to this) (Parent)

[info]bloodengel
2001-07-31 08:14 pm UTC (link)
i still have saturaday off...if you are interested in hooking up for endfest i would take really good care of you ;) i love my sarabear...everything will be ok sweety. i promise.

(Reply to this) (Thread)
Re:
[info]sarabear
2001-07-31 11:51 pm UTC (link)
thanks for the offer, but you HAVE to play janet!!!!!! =) =) my brother is gonna take me, so i'll be ok. don't worry =)

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Re:
[info]bloodengel
2001-08-03 12:28 am UTC (link)
i have not been officially offered any part as of yet...last i talked to kelly she was thinkin' margret...so until i am asked i consider myself not cast. actually...at this poit i was just thinking of working the key saturday night...guess we'll see what transpires. never the less...it's way to late at this point for me to reherse or come up for a costume ;( get me an autographed crystal method cd! *hugz!*

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Re:
[info]sarabear
2001-08-03 12:53 pm UTC (link)
i heard you were playing janet... and god damnit, you'd make the cutest janet EVER! =) i'll try to get an autographed cd, but i don't know how long i'm gonna stay at the show... i'm really tired and i think they play last. =P

(Reply to this) (Parent)(Thread)
Re:
[info]bloodengel
2001-08-03 06:31 pm UTC (link)
there second to last...offspring is headlining;)

janet is defiantly a no go at this point...

last i talked to kelly she wanted margret to janet...so i confirmed that i would work a show at the paramount for saturday night this afternoon...i would have loved to janet...but the last i heard from kelly i was trannying...at this point i don't even know if i will preform...things seemed very unorganized and extrmely too drama based for me to care much at this point ;(

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Re:
[info]sarabear
2001-08-03 07:17 pm UTC (link)
no, i went to the endfest homepage and it said that crystal method is headlining. *you* are smoking crack. so there. =P~

i'm sorry you don't get to play janet =( you would've made the best janet in the whole wide world. but, i wouldn't have been at the show to see it... so it's better this way... yeah..... hehehe.

*hugs* hopefully i'll see you before i go into mr. hospital! arf.

(Reply to this) (Parent)

[info]crowriff
2001-07-31 09:06 pm UTC (link)
Sara, all my thoughts, prayers, best wishes & love go out to you. I really am hoping for the best for you.

If ends up that you need a bone marrow transplant, I hope for a quick donor match and successful transplant. Carley asked about donation, you probably know this but for those that don't, family members are the best choice for a match. The donation process is usally blind donation except for family members donating. Your doctor might have an idea where people can get put on the donation registary. I know most blood banks particpate in bone marrow registation. All it takes is a little blood sample. I have been on the registariuon list. Even though it is harder to be a donation match outside your family it is possible. I was a match a few years ago. And the process for the actual donation of bone marrow isn't that painful or difficult especially when you consider the benefits.

Again my thoughts are with you and let me know or any of your other friends if you need anything. Take care and will talk to you soon.

(Reply to this) (Thread)
Re:
[info]sarabear
2001-07-31 11:52 pm UTC (link)
thank you so much patrick!! you're such a sweetheart =) *hugshugshugshugs* you're right about the bone marrow, so, they're looking on the national list. thank you for being so sweet =)

(Reply to this) (Parent)
Bone Marrow is nifty
[info]lectar
2001-08-02 02:51 pm UTC (link)
I've been on the national donor registery for almost 4 years now. The military has big drives almost every 6 months trying to get people on the list.

(Reply to this) (Parent)
even more chuckiebear love ;)
[info]bloodengel
2001-07-31 10:45 pm UTC (link)
*hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!**hugz!*

i love my sarabear ;)))

(Reply to this) (Thread)
Re: even more chuckiebear love ;)
[info]sarabear
2001-07-31 11:59 pm UTC (link)
awwwwwww =)

*hugs*

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[info]mephistopheles
2001-08-11 10:05 am UTC (link)
i'm sure you've heard a lot of survivor stories, but i personally think every little bit helps. :) my bestest friend in the world, lindsay, had non-hodgkin's lymphoma when she was in 5th grade, which went into remission after a vicious round of chemo and radiation. then, in 10th grade, after she'd moved and we became friends, she had a lump in her thyroid that was cancerous. since then, they took out her thyroid, and she's been doing great so far. she's been in remission for more than 5 years now, and she's definitely holding her own.

one of our traditions is to shake hands and say "let's both be healthy until we're crotchety old women, and then we can get a cold." i extend our tradition to you. i also extend my deepest sympathies. i wish there was something more i could do to help.

misty

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Re:
[info]sarabear
2001-08-14 01:03 am UTC (link)
Your tradition sounds wonderful! ;) Just by you leaving a comment makes me smile, and right now, that's about all anybody can do to help. Thank you =) =) =) =) =)

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